Uncertain suffering : racial health care disparities and sickle cell disease / Carolyn Moxley Rouse.

Berkeley : University of California Press, [2009], ©2009.

xiv, 314 pages ; 23 cm

"The George Gund Foundation imprint in African American studies"--P. facing t.p.

Includes bibliographical references and index.

The questions -- Race and uncertainty -- Sickle cell disease in the clinic -- Healthcare access and medical uncertainty -- The affective dimensions of pain -- Uncertain efficacy -- Uncertain suffering -- Reforming the system -- Finding a way out of doxa : anthropology of the imagination -- Adolescent transitioning : acculturating patients to the culture of medicine -- Thought experiment : what does it mean to save a life? -- Rethinking suffering : community-based health care, alternative medicine, and faith.