Chronic illness : from experience to policy / edited by S. Kay Toombs, David Barnard, and Ronald A. Carson ; with contributions by S. Kay Toombs [and others].

Bloomington : Indiana University Press, [1995], ©1995.

xv, 221 pages ; 25 cm.

Includes bibliographical references and index.

Sufficient unto the day : a life with multiple sclerosis / S. Kay Toombs -- The exceptional family : walking the edge of tragedy and transformation / Ruthanne L. Curry -- Chronic illness and the dynamics of hoping / David Barnard -- Rage and grief : another look at Dax's case / Lonnie D. Kliever -- Whose story is it anyway? Authority, voice, and responsibility in narratives of chronic illness / Sue E. Estroff -- Beyond respect to recognition and due regard / Ronald A. Carson -- Chronic illness and freedom / George J. Agich -- Disability and the persistence of the "normal" / John W. Douard --The social course of chronic illness : delegitimation, resistance, and transformation in North American and Chinese societies / Arthur Kleinman -- The role of the rules : the impact of the bureaucratization of long-term care / Muriel R. Gillick.