Ethnicity and screening for sickle cell/thalassaemia : lessons for practice from the voices of experience / Simon M. Dyson.

  • Dyson, Simon
Date:
2005
  • Books

About this work

Description

Screening policies for sickle cell and thalassaemia have only recently been formalized in the UK. This book asks what types of ethnicity information are relevant for health professionals to ask as part of this screening and why. Through extensive use of interview material, the book draws upon the experiences of sickle cell and thalassaemia counsellors who have been at the forefront of understanding in this area.

Publication/Creation

Edinburgh ; London ; New York : Elsevier Churchill Livingstone, 2005.

Physical description

x, 200 pages ; 25 cm

Related material

This book was donated as part of the Sickle Cell Society archive held by Wellcome Collection, reference SA/SCS https://wellcomecollection.org/works/erermr9

Bibliographic information

Includes bibliographical references (pages 191-197) and index.

Contents

1. Sickle cell, thalassaemia and haemoglobinopathy counselling -- 2. Listening to the voices of experience -- 3. Ethnicity, genetic ancestry, and the failure of 'race-thinking' -- 4. Screening under pressure -- 5. reactions of minority ethnic groups -- 6. reactions of majority ethnic groups -- 7. Towards a first-class service -- 8. future of screening -- 9. Conclusion -- App. 1. Letter to haemoglobinopathy counsellors -- App. 2. Participant information sheet -- App. 3. Participant consent form -- App. 4. Topic guide for interviews with haemoglobinopathy counsellors -- App. 5. Suggested ethnicity question.

Notes

Copy 1. Donor: Sickle Cell Society.

Type/Technique

Languages

Where to find it

  • LocationStatusAccess
    Closed stores
    M30519

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Identifiers

ISBN

  • 0443102325
  • 9780443102325