7 results filtered with: Rare Diseases
- Books
Experiences of rare diseases : an insight from patients and families / by Lauren Limb, Stephen Nutt and Alev Sen.
Limb, Lauren.Date: 2010- Books
Rare diseases and orphan drugs : keys to understanding and treating the common diseases / Jules J. Berman, Ph.D., M.D.
Berman, Jules J.Date: [2014]- Books
Dystrophic Epidermolysis Bullosa Research Association D.E.B.R.A. / Dystrophic Epidermolysis Bullosa Research Association.
Dystrophic Epidermolysis Bullosa Research AssociationDate: [1992]- Books
Orphan : the quest to save children with rare genetic disorders / Philip R. Reilly, MD, JD.
Reilly, Philip, 1947-Date: [2015]- Books
Improving lives, optimising resources : a vision for the UK rare disease strategy / [compiled by Lauren Limb, Stephen Nutt].
Date: 2010- Books
Biomedical research and orphan medicinal products : a roundtable conference / organized by European Platform for Patients' Organisations, Science and Industry ; rapporteurs Cees Smit, Alastair Kent, Ijsbrand Poortman ; editors Hessel Dijkstra, Erica Poot, Ilse Wilczek.
Date: [1998], ©1998- Ephemera
Research briefing : orphan diseases : mitochondrial diseases as a case study / ESRC Centre for Economic and Social Aspects of Genomics (Cesagen).
ESRC Centre for Economic and Social Aspects of Genomics.Date: [2007?]